The Ethical, Legal and Social Implications of Using Artificial Intelligence in Health and Social Care

Client: The University of Wollongong

THE AI STUDY ONLINE INFORMATION STATEMENT

You are invited to take part in an online survey. This survey includes a range of questions about you (such as date of birth, education, employment, and your use of government services). The survey also includes scenarios that describe current or future uses of Artificial Intelligence (AI) in health and social services. You will be asked about your attitudes and values regarding these uses of Artificial Intelligence.

Knowing what is involved will help you decide if you want to take part in the research. Please read this information carefully and contact us about anything that you don’t understand or want to know more about.

Participation in this research study is voluntary. So it’s up to you whether you wish to take part or not.

By clicking on the survey link and submitting your survey you are telling us that you:

Understand what you have read here
Agree to take part in the research study as outlined below
Agree to the use of your personal information as described.


Logo of ACHEEV

Chief Investigator: Prof Stacy Carter, Director Australian Centre for Health Engagement Evidence and Values (ACHEEV)

Building 15, Room 240, School of Health & Society, The University of Wollongong NSW 2522 AUSTRALIA

T +61 2 4221 3243 | E: stacy_carter@uow.edu.au


(Please click on the headings below to reveal further information.)

This project is administered through the University of Wollongong in collaboration with the University of Sydney, and funded by the University of Wollongong Global Challenges Program. The Social Research Centre and i-Link Research are being contracted by the University of Wollongong to conduct this survey.

Name Main area
of expertise
Affiliation
Stacy Carter Public health ethics and qualitative health research Australian Centre for Health, Evidence, Engagement & Values (ACHEEV) University of Wollongong
Dr. Scarlet Wilcock Australian social security law and policy University of Wollongong
Dr. Tam Ha Cancer epidemiology research University of Wollongong
Sr. Prof. David Steel Design and analysis of complex sample surveys University of Wollongong
Prof. Nina Reynolds Questionnaire design and survey research methods University of Wollongong
A/Prof. Khin Win Qualitative and quantitative research, health data analytics University of Wollongong
A/Prof. Lei Wang 20 years’ experience in artificial intelligence related research University of Wollongong
Prof. Nehmat Houssami Expertise in methodology of evaluating new technologies University of Sydney
Kathleen Prokopovich Research assistant Australian Centre for Health, Evidence, Engagement & Values (ACHEEV), University of Wollongong
Sebastian Isbanner Research assistant University of Wollongong
Victoria Hayward Administration Australian Centre for Health, Evidence, Engagement & Values (ACHEEV), University of Wollongong


If you agree to participate in the online survey, please answer the questions about you (such as date of birth, education, employment, and your use of government services) and the scenarios that describe current or future uses of Artificial Intelligence (AI) in health and social services. You can fill out this survey any time before 29 March 2020. The survey is anonymous, and we will combine and compare everyone’s answers.

The online survey will take up to 20 minutes to complete.

Any English speaking adult aged 18 years or older can participate in the online survey.

Being in this study is completely voluntary and you do not have to take part. Your decision whether to participate will not affect any current or future relationship with the researchers or anyone else at the University of Wollongong, the Social Research Centre, i-Link Research or the University of Sydney.

If you decide to take part in the study and then change your mind later, you are free to withdraw at any time without having to give a reason. There will be no consequences for you if you stop taking part.

While you are completing the survey, if you do not want to answer any question you will always be free to stop and close the survey without completing it, and your data will not be stored or used in this study.

If you wish to withdraw after you have completed the survey please contact helpdesk@srcentre.com.au.

If you decide to withdraw from the study, we will not collect any more information from you, and will remove the information you have already provided.

This is a low-risk project. We will remove any details that might reveal your identity. Digital files will be kept on password protected servers at all times.

Aside from giving up your time, we do not expect that there will be any risks or costs associated with taking part in this study.

If you have any concerns or questions about the study, you can contact the Chief Investigator, Professor Stacy Carter, on 02 4221 3243 or stacy_carter@uow.edu.au.

Although we hope you will find it interesting, the study may not be of direct or immediate benefit to you. To thank you for giving up your time, you will be reimbursed as per your agreement with i-Link Research or the Social Research Centre.

All surveys are anonymous and the answers you provide will be combined with everyone else’s answers, and stored securely with the rest of the data set.

All information submitted as part of the survey will be stored on secure password protected servers. The data will be transferred securely between i-Link Research, the Social Research Centre and the University of Wollongong. All data will be de-identified before it is given to the University of Wollongong. De-identified data will be available only to the research team. All information will be kept on a password protected University of Wollongong server share drive which complies with current University of Wollongong and Human Research Ethics Committee data storage requirements. Long term data storage will be on a secure password protected server at the University of Wollongong.

All the information collected from you for the study will be treated confidentially. The data and information collected will only be accessible to members of the UOW research team.

The study results will be presented at conferences and in scientific publications, including the workshops planned for the end of the project.

Once the data have been reported and presented, the research team will place the data, with all personal details removed, into the Australian Data Archive. This makes the data available for other researchers to use in other projects in future.

If any researchers plan to use the data in a future project, they will need to apply separately to a Human Research Ethics Committee for permission for this specific use.

By providing your consent, you are agreeing to us collecting personal information about you for the purposes of this research study. Your information will only be used for the purposes outlined in this Online Information Statement, unless you consent otherwise.

Your information will be stored securely and your identity/information will be kept strictly confidential, except as required by law. Study findings may be published, but you will not be individually identifiable in these publications.

When you have read this information, Stacy Carter or another investigator on the project will be available to discuss it with you further and answer any questions you may have. If you would like to know more at any stage during the study, please feel free to contact the Chief Investigator Stacy Carter stacy_carter@uow.edu.au

This study has been reviewed by the Social Science Research Ethics Committee at the University of Wollongong (2019/458). If you have any concerns or complaints about the way this research is conducted you can contact the Ethics Manager on 02 4221 4457 or email rso-ethics@uow.edu.au.